Thursday, November 4, 2010

Far from the Truth- part 2

Continuing on from my previous entry:


"Funding"

ABA receives funding to be used in schools because it has been PROVEN over many years and countless studies to be effective.  Funding is rarely available for experimental treatments, which is what any treatment is that lacks empirical evidence.  This one, I have to say, is not our fault. ABA in no way prevents people from conducting studies to show evidence of the effectiveness of other therapies.  When other therapies prove effective, they will get more funding.  Seems pretty logical to me.

And while on the subject of money they forget to mention the HUGE number of schools that do NOT offer ABA and the huge number of families who DO seek ABA services- out of pocket- for upwards of $30,000 per year.  BUT there are also a number of organizations that are non-profit and offer services for reduced rates or offer pro bono services.

If funding in schools is upsetting them, they must be having a hay day with the fact that new insurance legislation in many states specifically requires insurance policies to cover ABA.

"Friends"

The assertion that ABA only focuses on academic and self help skills is completely false.  As is the idea that ABA always requires children to sit still.  ABA can be done on the floor, it can be done while bouncing on a ball, while taking a walk, or while sitting in a chair.  Besides the fact that the skills taught with ABA are ones that are important to be able to be independent and as successful as possible in life, the idea that ABA doesn't promote making friends is just plain crazy.  Frequently siblings and peers are included in ABA programming in order for the child with autism to learn play skills and other interactions.  There are ABA based social skills groups.  Skills used to develop social relationships are just as much of a priority in a good ABA program as communication, self-help, and academic skills.

"Training"

I would love to know where they got this information.  When I began doing ABA I was trained for weeks, full-time, before being able to work with the children.  When I did begin working with the children, I was directly observed and trained further.  I was trained on the specific children I worked with, in depth, and training was ongoing.  This video also ignores the fact that ALL ABA therapists should be directly overseen by a qualified BCBA or BCaBA, both of which require a degree (graduate for the BCBA), additional specialized coursework, and intensive on-site training for at least 1000 hours(BCaBA) or 1500 hours (BCBA), in addition to passing a board certification exam.  Non certified ABA therapists are overseen regularly and it is the BCBA or BCaBA that designs the programming based on the child's needs and the parents priorities.  Anyone who performs ABA therapy needs to not only be trained in ABA procedures but also be trained on the child they are working with.  So no, by no means is our training short.  Nor do we pump out "lots and lots of peeps."

"History"

Ok they are right, ABA was started by a behavioral scientist.  I don't know about you, but I would rather follow treatments designed by a professional.  As great as mom's home-made chicken soup may be, nothing soothes strep throat like some anti-biotics.  Additionally they are misleading when they say "some" people who use ABA have dropped using aversives.  The truth is MOST have dropped aversives.

"Social vs Academic"

Autism is a development, social and COMMUNICATION disorder.  Kids with autism do not learn in the ways that typical children do.  It is not that we do not address social deficits- as I stated in response to an earlier video WE DO.  We simply address ALL areas of need the child has.  It is a PERVASIVE developmental disorder that affects nearly every area of development- including academic.  ABA does NOT focus solely on academics.  If anything, ABA is tending recently to focus on communication

"Published Research"

I admit, there are many people who dispute the idea that ABA is the only therapy scientifically proven to benefit kids with autism.  The truth of the matter is, from what I have seen, other therapies that have research supporting them are ABA based programs that just don't call themselves ABA.  There is a HUGE amount of published, peer reviewed, research supporting the use of ABA techniques- and not only for autism.  There are entire journals dedicated to the ongoing research.  The claim that the results of the original study haven't been reproduced is just silly.  Perhaps the gains seen in further studies haven't matched the original study, but this does not mean the recent research doesn't show ABA is effective.  There have been LARGE studies being run to examine the effectiveness in recent years, government funded, which have shown SIGNIFICANT gains from ABA therapy.

"Attitude"

This video is trying to make it sound as though ABA is cold, unwelcoming, unenthusiastic, and doesn't promote hope.  As with the other videos, not true.  Excitement, positivity, and certainly hope are rampant in ABA programs.


As a final note I would like to point out that of course, not every ABA therapist is a GOOD one and not every ABA program is a good program.  Certainly, there are therapists and programs out there that are not using the current best practices, or that focus too strongly on academics, etc.  These programs are NOT the typical ABA program.  ABA programs help families and children see and make real change and great progress.  ABA helps children lead productive, happy, social lives.

~KVL

Far from the Truth- part1

I am going to outline for you the misinformation presented by the video series "ABA vs Son Rise Program" in order as it appears.  There is just so much of it, and as you can see from the comments in the videos most people are starting to catch on that those who made the videos are either greatly misinformed or intentionally spreading untruths to make themselves look better.  I will give them the benefit of the doubt, and assume that they have not had much experience with ABA beyond the outdated methodology first outlines many years ago.

Let me start with the first video, found here on "Joining":
http://www.youtube.com/watch?v=N6CWf9H7F8k

Now, this one is just silly.  For starters, and this is just purely superficial, you will be far more likely to find ABA therapists in jeans than in suits.  Why?  Because we work with kids.  Ones with autism.  Through the course of the day we will likely be joining a child on the floor or engaging in an activity that is likely to require frequent washing of our clothes.  Kids are messy.

Next they tell us the first order of business with ABA is to extinguish repetitive behaviors.  This is just ridiculous!  Do we sometimes do this?  Yes- when the behaviors are harmful or greatly interfere with the child's ability to learn and interact.  However unless the behavior is physically harmful (head banging, picking nails off of fingers, etc) they aren't likely to be the "first order of business."

Now on to scripted behaviors vs relating to people.  Yes, ABA may teach certain things in a scripted manner for some children.  However, there are many ABA techniques that teach the same skills in an un-scripted manner.  I question, as well, their definition of "relating to people."  By joining in repetitive behaviors, are they relating to us, or are we relating to them?  And will they be able to relate to other people, out in the real world, who are not going to join in their repetitive behaviors?  Which will lead to relating better to more people- joining a child in their hand flapping, or teaching them to ask and answer "how are you?"  And is there a reason we can't do both?

The second video in the series is about "Choice":
http://www.youtube.com/watch?v=SRZqOro8dmo&NR=1

ABA therapists don't necessarily want everyone to choose ABA.  We want parents to choose therapies that are EFFECTIVE and have been proven to be so.  We do not want parents wasting their valuable time and resources of treatments that have no effect or are even harmful.  If there is only one therapy available that is proven effective, then it does not seem to me that there IS a choice, however.  Not having a choice of treatments doesn't imply there is anything wrong with the current treatment.  How often do people refuse speech therapy for a child who stutters?  Chemotherapy for a kid with cancer?

This cookie cutter idea.  This is one of the craziest things I have ever heard.  ABA is a highly individualized therapy.  Skills addressed are entirely determined by what the child's strengths and weaknesses are, and specific techniques within ABA which are used to teach those skills are tailored to what works best for each individual child.

The third video in the series talks about "Motivation":
http://www.youtube.com/watch?v=fy6T7FXmnJI&NR=1

Here is where the really out-dated information comes in.  Discrete Trials is ONE of the methodologies encompassed in the universe that is ABA.  This is NOT all that ABA is all about, though this is a popular misconception.  There are other, newer, methodologies such as Verbal Behavior which really use and focus on a child's natural motivation.  We do use things other than candy and food items.  If a child, for example, is enjoying playing with a shape sorter we use that to practice learning shapes and colors.  If a child really wants to talk about monkeys today, we can use that to practice differentiating facts and opinions.


I have decided that this deserves two parts, as this entry is getting long.  Stay tuned for my response to the remaining videos!

~KVL

Wednesday, November 3, 2010

Pet Peeve

Let me be frank here.  Little cheeses me off more than coming across misinformation being presented as the truth when it comes to ABA.  Very often, people who have NO real experience with ABA programs insist that ABA is... any number of things it is not.  Harsh, cold, robotic.  Not guided by the child's interests.  Doesn't address the core deficits of autism.  None of these things is true!  It is important to note that there are a number of different techniques which are all considered "ABA."  These techniques can look vastly different from one another, however, all are guided by the principles of reinforcement and operant conditioning.  Some are child led,others more structured and scripted.  What determines this?  In a good ABA program, what determines this is what is best for the child.

I particularly dislike the videos from the Son-Rise program, which has no empirical evidence backing it (despite misleading people into thinking that there is) that compare their program to ABA in a manner mimicking the Mac vs PC commercials.

In the following entry I will point out all of the misinformation contained in these videos.  For now, I will leave you with the following link, which is an open letter to the CEO of the Son-Rise program, Raun Kaufman: http://www.asatonline.org/media_watches/41

~KVL